Category Archives: Personal Posts

Christmas Tree Hand Made Biscuits Gifts

Christmas Tree Hand Made Biscuits Gifts

Christmas Tree Hand Made Biscuits GiftsWhen you have a child with special needs I think that a Hand Made Christmas gift for their teachers is a really special touch. The teachers know that The Sensory Seeker does not cope with the change of routine that Christmas brings, and how hard he has worked at making their gift. Not only does it help show the progress he’s made but it also helps him cope with his Sensory imbalance. This year he made Christmas Tree biscuits – which I then simply packed into cellophane, tidied some ribbon round and added a bow.

Hand Made Christmas Tree Biscuits Gifts

The recipe to make the biscuits is slightly more complicated but The Sensory Seeker used an all in one mix which seemed to work okay.

Christmas Tree Biscuits Ingredients

250g Softenend butter, 140g castor sugar, 1 egg yolk, 300g plain flour (plus extra if it is to sticky and for the surface/rolling pin), orange flavouring

For Decoration: Ice sugar, colouring, sweets.

Christmas Tree Biscuits Method

Christmas Tree Hand Made Biscuits GiftsMeasure all the ingredients. The benefits for The Sensory Seeker were that he had to listen, follow instructions and his attention/patience were stretched. I often had to change my use of language to be simpler for him, or less abstract to him. For example after weighing the sugar and flour they both needed tipping in together. But both items were white and some The Sensory Seeker did not understand the instruction tip the sugar in with the flour. But when I told him to put the contents of the white little bowl into the green big bowl he was able to understand.

Mix together all the ingredients. The Sensory Seeker started by stirring with a spoon, this was beneficially for him learning to try and stop himself from just touching things. I did then let him mix it in with his hands – which is good for his hand development as well as getting the desired tactile sensory input that he requires.

Next the mixture was rolled out and Christmas Trees cut out using cutters. If you have no cutters I am sure a Christmas Tree shape would be easy enough to make with a knife. They were then baked in our fan oven at 180 degrees for around 20 minutes (watch the biscuits and smell them until they are ready). Let cool before decorating.

Decorating the Christmas Tree Biscuits

Christmas Tree Hand Made Biscuits GiftsSimply colour some icing green and pour over the Christmas Trees. Whilst this is still wet decorate with stars and circle sweets (to represent baubles). When this has dried squeeze on more coloured icing to represent tinsel.

Turning Christmas Tree Biscuits into Hand Made Gifts

To turn the Christmas Tree Biscuits into beautiful Hand Made Gifts then simply shape some cellophane around them (we got ones with Christmas Trees on from Ebay), and secure it in place with sticky tape. Make it more of a gift by added some ribbon in festive colours and a bow.

Christmas Tree Biscuit Gifts Benefits and Problems for The Sensory Seeker

Christmas Tree Hand Made Biscuits GiftsMaking the Christmas Tree Biscuits provided a lot of benefits to The Sensory Seeker, but there were also a few problems to overcome. Whilst making the mixture up I also talked to The Sensory Seeker a lot: This was good for his auditory sense, following instructions, and his understanding – as we discussed concepts such as number, texture, etc. He has made great relationships with the staff at school and it was great to see him taking such pride in the activity. This is great for his sense of self and of his World (thinking about others). I was actually really impressed with him asking if it was time to start the next section again when he was allowed to play on computer games. The activity was great for his hand development with mixing, rolling, cutting, transferring (the biscuits onto the tray), and fine motor for adding the sweets. Most of these also helped his hand-eye co-ordination and his sense of place. He was able to meet many aspects of his Sensory Diet such as adding in some orange flavouring, which is good for the sense of smell, whilst giving the biscuits a Christmas feel. The Sensory Seeker DID need to wash his hands A LOT as inevitably he ended up touching. The surfaces also needed a lot of cleaning. The Sensory Seeker was particularly unable to resist the butter and had to be stopped from giving the (cooked) biscuits a little kiss (to give his teachers his love). It was a great way to let him become more aware about hygiene. Sitting still is quite difficult for The Sensory Seeker so the biscuits were made in stages. He also sat on a stool that allowed him to spin around and around in circles getting his vestibular input.

Note for parents: This activity may require a lot of patience and result in a lot of mess. We did it in the kitchen (with easy wipe surfaces and floors) and not far from the sink.

Christmas-countdown

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sensory seeker in the tactile sense

School holidays and The Sensory Seeker

Work destroyed – torn to pieces and coloured over, head butting, saying inappropriate things, playing with food, not eating favourite foods on an already limited diet, not sleeping, standing on his hand, spinning, attacking his brothers and smearing ice-cream all over his face. Yes this is the first three weeks of the school holidays. But you know what – it is going well!

School holidays and The Sensory Seeker

Ways to cope with The School Holidays and The Sensory Seeker

The fact that I can even list what my 5 year old has done that is a tad bit stressful so far these holidays is real progress. In fact a lot of them were one off incidents instead of daily occurrences. In fact the reason I am even able to write this is that the school holidays are going so well that he has gone off to a summer day football session. It is at his school with a familiar adult but still a massive step forwards. I think that the two key ingredients for me are that I am not letting myself get wound up about them (he can’t help it and it must be worse for him) and trying to ensure he has a sensory diet to lower the risk of him not being able to cope.

Listening to The Sensory Seeker

I have stopped trying to force him to do things because I fear he will become an adult that can never do them. For example we missed seeing The Lost Dinosaur when we went to The Eden Project because he really could not cope with the sensory input anymore. The barefoot trail really helped him but he was really struggling. We have learnt to watch and listen for his cues and act on them. In this case we removed him from the situation and went back to the holiday park.

Diet and The Sensory Seeker

The food thing is so frustrating but actually relaxing about it has been what has worked for me. So what if he has smeared food all over himself before eating it, yes not the most hygienic but it won’t kill him. Surely it is better than him not eating at all. I am careful as to how many foods I give him, make sure they are not touching, something I know he does like. I never expect him to eat anything – even things he does like. I am prepared to barter with him to get him to eat something healthy. He is learning to understand about when he is at school and when he is not. He has shown this by telling us that he can have pancakes on non-school days (they take time to make and wash up after). Just before the holidays ended he decided that he did not like chicken roll – which was the only sandwich filling he would eat before! Now he only wants to eat wraps. There’s no point in making a battle of it I just listen to what he wants.

School holidays and The Sensory Seeker

Things that have really helped with our Sensory Seeker and the School holidays

A paddling pool – we have a big pool outside and he can get in and out when he pleases.

Guns – water and the BOOMCo Madness Rapid Blaster – good for helping with his hand development.

The trampoline – this is an all year round thing that helps but our 14ft trampoline is great for him.

Ice – we made some frozen Lego shapes, great for his sensory needs.

School holidays and The Sensory Seeker

Cardboard boxes – squeezing into a tight cardboard box was good, and he loved that he was able to destroy it afterwards.

School holidays and The Sensory Seeker

Chocolate milkshake – this has been a big bartering tool this summer.

Picnics – I think he prefers cold food and he has loved the variety of a picnic. Plus with it not being hot food he can eat when he wants to. Particularly successful was when we made a last minute decision to take some jelly on a picnic.

School holidays and The Sensory Seeker

Luckily we have a chill factor jelly maker that makes jelly in minutes and not hours. Following on from the success of Character’s Chill Factor Slushy and Ice Cream Makers they have now bought out a Jelly one! Simply leave in the freezer (minimum of 6 hours) and then when you want to make Jelly add your mixture and it is set in minutes! You need to use half the amount of water than normal, and you squeeze, squeeze, and squeeze some more. Then after a few minutes flip it over and leave for another minute to set. The jelly maker is suitable from 5 years (although they will need someone to make the jelly mixture). We found that it was really good for our five year old Sensory Seeker’s hand development. I am always forgetting to make the jelly so this is just perfect for me. Or for my impromptu visits to the park with a jazzed up picnic.

Not worrying about bedtimes – we will suffer later no doubt but whilst the sun is shining late at night and there is no school we have been much more relaxed about what time he (and all the boys) go to bed.

Keeping him active and entertained – using visuals such as alphabet bingo or working through his Gold Stars Starting Maths for the summer gold stars challenge. Children need to keep their education going through the school holidays so they do not forget things. As he is behind his peers I feel that this is particularly important.I picked the lower age book (3-5 years) and think it has been beneficial to both of us to see how easy he seems to be finding it. I feel it has really helped illustrate just how far he has developed in his reception year too (as he is still working towards all but one National curriculum levels and may be moved to P-levels). Each page has a simple activity and it is very visual. It was good for communication as we both discussed things in the book and what was expected of him. He is loving the stickers that he gets as a reward for completing each of the pages too. If he does all 30 then he will receive a certificate too. It has helped me identify that he needs more help/practice with colouring in.

School holidays and The Sensory Seeker

We have also had lots of play, meeting up with others, days out, etc. with much more planned for the rest of the school holidays.

I would love to hear how other people are coping with the school holidays with their child with Sensory Processing disorder. Or any tips/strategies that they use.

We received a free Chill Factor Jelly Maker and Summer Gold Stars Maths book for purposes of review. No other compensation has been given. Words and opinions are my own.

he is disabled

He is Disabled

Being reminded that he is disabled

I think the main problem I am having with deciding whether to hold our son back at school a year or not is that it means accepting there’s something wrong not quite right with him. Funny as we all know he is disabled, he gets disability money and has full-time one-to-one support at school. It is easy to compare him to others with disabilities and think that the term really does not apply to him. He is so behind his peers in so many areas, but yet he’s just our son. Sometimes it’s easy to think that it is me with the “problem” – not giving him enough attention, bad parenting, I do not have the patience. I would rather those things be true and strive to help him as much as I can. But the reality of it is it is him and the fear that he may never develop further is frightening.

he is disabled

Pushing all these fears away and just being positive not thinking that he is disabled really helps with day to day life. So he wets himself and doesn’t sleep at night – lots of children do that at aged 5, he is still young. If he moves up then I could see that as a problem as he may be the only child to do those things. If he stays down then those younger than him may overtake him.

The Fears

I know this is covering old ground but the decision day is getting closer. I had a chat with him and he really wants to move up. On days when I forget that he is disabled he seems so level headed, and that it would just be stupid not to let him move up. Suggesting that he will fail before we even let him try. But should we not upset him and just wait for him to fail, or should we nurture him and prevent him from failing. I know that the education system is more likely to help the school financially after he has failed – but we are lucky that he’s at a good school and they do not want that. He’s had a lot of changes lately and he’s not been himself. I had the back door open earlier and I told him not to go outside. I said that it was too wet. It was fresh air – I didn’t add that. I just said, “Kyle, don’t go outside. It is wet.” He is five years old. He said, “What did you say?” and I repeated it. Then he repeated, “What did you say?” and I repeated it again. This happened another few times before I just kissed and hugged him. Then I went upstairs and cried. He is disabled and just because it is invisible does not mean that he does not need the help. I have to stop thinking in terms of failing him and think in terms of what is best for him. I wish I had the answers.

he is disabled

But after the decision is made I shall continue being positive for him. He has come such a long way. If he stays behind he will be ahead of his peers. Then that will be good for his confidence. If he moves up then it will be because it has been decided that it is best for him and he can cope. Either way I can forget that he is disabled then he can just be Kyle again.

batman mask

Batman Mask from a Cardboard Box

Being a mother is hard work, we all know that. So why do we continuously put too many expectations on ourselves? Well I’m learning to let go of them a bit and focus on what’s important. Now that will mean different things to different people. For me I decided that spending quality time with my children is far more important than an immaculate house (in fact even if I had no children I just don’t think it’s in my nature to spend my life keeping a sparkling pin home, as I say we are all different).  I know that right now the best thing I can do for my Sensory Seeker needs to help him develop is just play with him. On a Wednesday his brother goes to football club. In fact I think so do most of his friends. But I just don’t think it is fair on anyone that he goes because of his needs. To make up for him missing out on this I make sure we do something together.

 batman mask

The Batman Mask

This week I had a nice sensory activity of salt dough lined up. This is something I have never done before and thought he’d appreciate it (I’d just need to watch that he did not put it in his mouth). But then I saw it THE CARDBOARD BOX. It just kind of screamed at me that it would make an AMAZING Batman mask! He is loving everything related to Superheroes and Villains. I popped it on my head and it was the perfect size. I simply cut out some cereal boxes for ears and stuck them on. Cut out holes for the eyes and mouth – and viola – it was ready for him to paint.

batman mask

One of his problems has been to develop his attention – how long he can sit at a task. Using something he is interested in has been a great way for helping with this. And he did, he sat and helped paint it all black (we were going for the Lego Batman look).

batman mask

Also painting Batman was good for helping with his fine motor skills, his hyper-mobility in his hands, turn taking (with the brushes), his self-confidence, he knew to paint around the holes so developed his control, as well as learning that the bigger brush covered more of the box quicker. I learnt that if you add glue to the paint it will cover the tape!

batman mask

And you know it didn’t really look that good. But he was so pleased. And most importantly we had spent that time together. Oh and he argued it was his Batman mask when I put it on – so he must have liked it.

batman mask



”Sunday

writing name

Name Recognition

Name Recognition – A Proud Achievement

Recently I mentioned how proud we are that our son was writing his own name. To do this he first had to recognise the letters, then copy them, and then remember them to write them without looking. Being such a visual learner we like to ensure there are plenty of words visually around in his environment. Research shows that most learning is done without even trying to remember things. This is why learning through play is so important.

Writing his Name

I am really proud to say that today my son managed (with help) to write his name with all the letters the right way round! (Without looking at a visual reminder).

writing name

Not only that his one-to-one support worker looked like she wanted to cry with happy tears yesterday, as she told me how he had written (copied what she wrote) two whole sentences!!!!

We have been playing with things such as letter stickers and shaving foam to help with his letter recognition at home. What letter activities do you do to help your child?

What things have your children achieved – no matter how big or small?

blood tests special needs

Blood Tests – Is this the end of the road to Diagnosis

Blood Tests – The Next Stage

Now they have ruled out our son meeting the Diagnostic criteria for Autism they want to determine if he has something else: Something that can be determined by simply doing a blood test. I say that like it is the easiest thing in the World. I feel so selfish for wanting it to come back negative, but before you defend me it is not for the right reasons. You see it is apparent that our son does have additional needs, it’s the determining what. So a test coming back negative is just another barrier to helping find out what it is, so that the best course of action is taken for him. No the problem with the test coming back positive is that then they will want me to give blood too.

blood tests special needs

Giving Blood facing my Phobia

I could have refused, but I am not going to be the one to stand in the way of my son getting every bit of help and support he can. However, I did nearly collapse in the hospital when it was suggested (they kindly went and got me water). In fact even writing this is making my arms itch and my body feel faint – like I shall collapse. If you have not gathered I have a needle phobia. This is how our son started life. I was meant to have bloods taken at 34 weeks – but the midwife wasn’t available. I ended up having them when I labour (at 35 weeks). Magic cream, gas and air, very loud iPod, and my husband stroking my head, I SCREAMED the whole time. Lying down at least meant I couldn’t faint. See I can do it, when I have to, if I have to.  And I do, have to.

Blood Tests what they mean for my little boy

CGH Array Analysis and Fragile X Testing the letter says. New terms, not both unfamiliar, I vaguely remember someone telling me he sounded like he could have Fragile X before. Do I dare look, search out the answers, or do I just wait?

His test is Thursday. Luckily my husband’s work have been amazing. And so has he. He has the day off to take him. My son, I’m sure, will be fine. Poor thing has had so many (not as many as a lot of children I am sure) blood tests and things. He is such a good boy. And then more waiting. Will I look in that time? And what if he is positive? What if I’m positive? What then?

No we shall wait, and just be positive, and not think about the blood tests, or the needles, and just stay focused on the happy little boy who is coming along so well.

official diagnosis

Official Diagnosis – Accepting it is not Autism

The Official Diagnosis of our son not having Autism

It was always going to be hard to accept whatever the Paediatrician said to us, the road to an official diagnosis was always going to be rocky.  I had prepared to be upset when it would be announced that my child has Autism (even though I have been having to stop and correct people for saying it). Autism it is what people have heard of, isn’t it. It’s what people know and it feels kind of safe inside that label. When the official diagnosis came back as our son not having Autism it was initially hard to accept. This was despite the fact that I had been prepared that this maybe the case (see my post on Sensory Processing Disorder).

official diagnosis

Why an Official Diagnosis of Autism is what I thought that I wanted to hear

Most people’s reactions were that it was good news – after all Autism is a lifelong condition that no-one particularly wants for their child (see my post on differences of opinion about whether people would want to take it away if they could). But the fear and uncertainty that an alternative diagnosis brought really made me want to fight against the outcome. Our oldest has Asperger’s Syndrome so we have an idea of how to deal with things, what we can do to help, where to go for support.  Plus a diagnosis of Autism would have made it easier to remember what the official diagnosis is (but that is NO reason to want it to be Autism). I guess that, for me, it feels so much ‘like’ Autism that it just feels like he will not get the associated help but still have problems associated with his disability.

official diagnosis

The Official Diagnosis

The official diagnosis was that his behaviour could not be explained by autistic spectrum disorder that a diagnostic formulation at the present time is one of language delay/disorder, developmental delay, immaturity of attention, play and social/emotional development.

What the Official Diagnosis may mean to his future

This may now affect so much including his statementing, his financial help, the way he is treated, his support in school, how people react to his behaviour, and so on. But for me the difference is one of knowing where to look for the support, . It is so much easier to find support groups and courses for children on the autistic spectrum, and now he isn’t in that category I am not sure if I can, or should access them. The situation is still the same, the same advice still works, but somehow everything seems different now. I am grateful that the school are doing all they can, he is coming on leaps and bounds. So far the official diagnosis has not changed that. But they are funding him the extra hours, expecting a diagnosis of Autism I presume. I’m not sure if at his Statement review he is still not awarded full time support whether they will be financially able to keep that up. I’m also concerned that he has a statement categorised as cognitive and hope that this official diagnosis will be able to change that to communication and interaction.

Staying positive after the Official Diagnosis

Whatever happens the official diagnosis has been made and there’s just no point getting upset about it. He doesn’t fit the Autism umbrella but they have been clear that is not down to parenting or behaviour problems. They have identified what areas he needs help with and there is support in place. This Christmas he has been amazing. He has developed so much and coped so well. It hasn’t gone without problems (his official diagnosis did not say there would be no issues) but watching how far he has come is just amazing. He is such a happy boy and really made this festive period special. We have so much hope for his future, even though the official diagnosis was not what we expected to be, and we do not fully understand what we are now dealing with.

official diagnosis

What happens after the Official Diagnosis

I do not know whether he will later have another diagnosis, as feels is the case in how we were spoke to and the fact that the diagnosis says “at the present time.” This decision was made by a second paediatrician through a D.I.S.C.O. and we have to go back next month and see the original lady we have been speaking to for over a year. I’m not sure what will happen then, and whether she will add on any sort of Sensory Processing Diagnosis. What I do know is that there are suggestions for help, and that the best way to help is to play with him with something that he is interested in. This is important to me, because it doesn’t really matter what the label is, as long as we know how to keep moving him forward. We have a new speech and language therapist coming out to see him (and she also works at the communication and interaction to centre we wanted him to attend) and am sure the school will continue to support him and us.

If your child has been unable to get a diagnosis then you may be interested in SWAN UK , which is a project run by Genetic Alliance UK offering support and information to families of children with undiagnosed genetic conditions.

This is NOT a sponsored post.

Resistant to Change

Resistant to Change – Meltdown or Avoid

One of the things we were asked during the assessment to determine whether our son had Autism was just how rigid our routines have to be – is our son resistant to change? No he doesn’t like his routine changed and, especially at Christmas, this can be a big thing. However, we do not have to have a really strict routine, with many rituals. Personally we feel that this is because we couldn’t do it, so don’t. My brother (who has Aspergers) was resistant to change – he is now approaching 30 years old and is most likely still playing with his wooden blocks with letters on that he had as a child. Growing up I remember that he had to make sure all his teddies were a certain way before he could even leave the room. Possibly we are ‘lucky’ that our son’s needs are not like that. We do feel that a certain amount of forcing our children beyond their comfort zones, and handling meltdowns (as opposed to avoiding them) is beneficial for the long run.

Resistant to Change Experiences with our Oldest Son

Our oldest son was resistant to change, we would tell him that we would be going to place X via place Y, and if something cropped up and you had to go to place B too he would have a meltdown.  It went from changes and big disruptions, to him wanting to know every minute detail, and nothing could change. We were exhausted trying to even plan taking him anywhere, and wished we didn’t have to take him. Days out were so much less stressful without him – which made us feel awful as of course we felt he was a valued member of our family. Even now he is resistant to change, he does not understand why he should go anywhere, or do anything, that isn’t going to directly benefit himself. We are keen to work on this straight away with our little Sensory Seeker.

How does your child deal with changes? We find that even small changes at school can be really upsetting for The Sensory Seeker. Currently he has been wetting himself more often. Does anyone have any tips?

Autism assessment - school help with visual aids regardless of a diagnosis

Autism Assessment: The Video Appointment

Last week we had the big appointment, the next step in the Autism assessment. As you would expect we still do not really have any answers. The paediatrician took me and my husband into one room whilst two speech and language therapists went into another room to play with our little Sensory Seeker. It was checked several times that we were clear and okay with the fact that they would be video recording his behaviour.

My super hero - imaginative play - autism assessment

At the beginning of the Autism assessment it was made clear what we and they hoped would come out of the appointment. I was clear in the fact that I believe him to have high functioning Autism and would like a diagnosis if that were the case; and if not to discover what it was.

Autism Assessment – Pregnancy, Birth and the First 2 years

During the Autism assessment the paediatrician asked a lot of questions about the pregnancy and first two years of his life. It makes me feel pretty bad because it is all a bit of a blur and to be honest he cried a lot, I found it hard to play with him (he still has limited attention span), and can’t really remember much mother-baby communication (apart from a smacking of his lips kind of clucking sound when he wanted feeding).

The paediatrician could not have been lovelier for the duration of the Autism assessment, asking how I’d coped with 4 boys (especially since I had been breastfeeding both of the youngest 2 at the same time). I did remember how empowered I had felt when our little Sensory Seeker was a baby, especially when I did not give up and let people tell me that my breastfeeding was the cause of his weight loss.

She reassured us me that his behaviour was not down to parenting, and nor did she believe that he was suffering from a developmental delay (although I’m sure I would prefer this to be the case so he could catch up I just know it not to be true). That they had enough experience to be unpick the complicated nature of his behaviour and see which boxes he ticks, and categories he falls into. That actually, mainly due to his language developmental delay, he may end up diagnosed as something now, and then a few more years down the line reassessed and re-diagnosed. That the important thing was to establish what help would suit him best right now. The thing is I know this Autism assessment will question his imaginative play and language delay coupled with just how bright he can be – which conflicts an Autism and Aspergers diagnosis. He may still remain undiagnosed.

Autism Assessment – Different view points

There’s always a worry that people do not see what we see – and I am sure I can say we here and it’s not just me. So it was reassuring that at the end she went and spoke to the language therapists, who took part in the Autism assessment, they described him (and the way he plays) exactly as we just had. What that all means I do not know.

I know the paediatrician has arranged a meeting with the school next month – so there will not be any answers until after then. But things are coming along well. His one to one support is looking after him well, and I can see he is popular among some of the children. I saw a couple of boys doing this special ‘tickle’ thing our boy does yesterday to him.

Autism assessment - school help with visual aids regardless of a diagnosis

Every morning we go in and we look at his visual book together. His one to one shows him the picture of what he is going to do and then he finds it in his book and puts it on the next page, then the next picture, then the next – until he can see what he is doing for the whole day. His one to one has copies of the pictures and together they pin them to a wall in the book corner. As the day goes on, and the activities are done, she takes them away. This means he can see what is left to come, and sort of a judge of how much of the day is left. I take the book home and we can then ‘discuss’ what he has done at home. I’m finding he is getting more and more patient with it all, a clear sign his attention span is developing too.

Diagnosis Autism - the emotional rollercoaster of the wait @pinkoddy

Diagnosis Autism – What will tomorrow bring?

Diagnosis Autism Final Assessment

So the time has come. The decision will be made. What will that decision be? Diagnosis Autism ?  Will there be any going back? How much will it change things? Tomorrow we attend a social clinic. There they will film my son. And me. Playing. They want to analyse whether he has imaginative play and what his relationships are like. And well I don’t know what they are doing. Probably  for the best. But from this they will finally decide whether my son will get the diagnosis Autism. Or not. See my previous post about This is My Child: Undiagnosed.

Diagnosis Autism The Emotional Rollercoaster

I am riding a massive emotional rollercoaster. I’m not good with emotions myself. Maybe that’s the problem. He does not need a diagnosis Autism. Maybe he just needs better support than I can give. But the more I wish this was the case I just can’t accept it this time. My son has special needs. I wish it were even less obvious. I mean it doesn’t even matter – he is happy! He is supported. He is loved. I do not even know what I’m scared of. He has made new friends at school and is settling well. The school are supportive and have put in place full time 1:1 support. They accept he has additional needs, whether or not he gets a diagnosis Autism. They do not think I am doing anything wrong.

Diagnosis Autism - the emotional rollercoaster of the wait @pinkoddy

Diagnosis Autism or Not and Impact on the Statement of Special Educational Needs

When a child receives a Statement they must have a Primary need in one of the 3 areas. Basically there’s behaviour, Cognition and Learning, and Communication and Interaction. To attend a Communication and Interaction Centre (as suggested was the most suitable place for our son) then the child MUST have Communication and Interaction as their PRIMARY NEED. The Communication and Interaction team usually see the child for a lot longer than they have seen my son so far (the delay is a whole other story) and because he doesn’t have, but is awaiting to see if he is going to get, a diagnosis Autism they felt it wasn’t worth arguing against the fact that his Statement has his primary need as identified as being Cognition and Learning. That the panel who decides if a child can go to their Communication and interaction centre would be most likely to turn him down too, as there’s not enough “evidence.” But the communication and interaction team stayed with him because I wanted him to go to this centre (where most of the children have Autism). But what if it is not diagnosis Autism? Then what? His statement will not be changed and he will not keep the team looking after him. The switch sounds like it will then be harder to get the hours on his statement.

Diagnosis Autism realising how lucky we are

Maybe I am just panicking. I keep being told how lucky I am. And I know there are children who need so much more care, I do. My son is lucky and I am lucky to have him, that I do not deny. And to have a Statement in place before he even started school too. But that doesn’t stop me worrying about my little boy and wanting to do the best by him.

So we shall wait for tomorrow and see what it brings.

Here is a help page by the NHS

This is not a sponsored post.