Sometimes a bad day happens and it is amplified by the fact that it isn’t just a bad day, it is another bad day, with yet another meltdown. That if you have any time and energy left after fighting the bad day to look for help that you are met with either a brick wall … Continue reading Bad days
Honestly whose responsibility is it for making sure that every child receives a fair education? As it seems to me that the quality of education falls down to the parents. Of course this could be a whole topic of private vs public and grammar schools but I am in this instance talking about the rights … Continue reading Is it down to Parents to Make sure their Children get a Fair Education?
Being reminded that he is disabled I think the main problem I am having with deciding whether to hold our son back at school a year or not is that it means accepting there’s something wrong not quite right with him. Funny as we all know he is disabled, he gets disability money and has … Continue reading He is Disabled
I first knew anything about Autistic Spectrum Disorder when my younger brother was diagnosed. I remember he liked to play with electrics and plugs and my dad told me to watch Rain Man. Later my oldest son was also diagnosed as having Asperger’s Syndrome before The Sensory Seeker had his assessment. Then there’s the suspicion … Continue reading Share our Journey
Moving from Disability Living Allowance (DLA) on to Personal Independence Payment (PIP) was always going to be a difficult time – for one we (my son and I) struggle with change. But with the horror stories added in to the mix with the uncertainty it wasn’t something we were looking forward to. In fact if … Continue reading Claiming PIP with Aspergers Syndrome
Inclusion what do schools think that means? I recently went to The Sensory Seeker’s annual review of his EHCP to find out that his school means that they don’t want him to be different. I guess it is a feeling of once again coming back to rubbish parenting really, as it sounded like that the … Continue reading Inclusion means not being Different
I think the one thing as a parent of a disabled child that makes it easier is knowing that you are not alone. Sometimes you may do that awful thing and realise that things could be worse and grateful that they are not – or maybe that’s just me. See until recently, I thought that … Continue reading Different Disability Opinions – Some you never Expect
Last week we had the big appointment, the next step in the Autism assessment. As you would expect we still do not really have any answers. The paediatrician took me and my husband into one room whilst two speech and language therapists went into another room to play with our little Sensory Seeker. It was … Continue reading Autism Assessment: The Video Appointment