Autism assessment - school help with visual aids regardless of a diagnosis

Autism Assessment: The Video Appointment

Last week we had the big appointment, the next step in the Autism assessment. As you would expect we still do not really have any answers. The paediatrician took me and my husband into one room whilst two speech and language therapists went into another room to play with our little Sensory Seeker. It was checked several times that we were clear and okay with the fact that they would be video recording his behaviour.

My super hero - imaginative play - autism assessment

At the beginning of the Autism assessment it was made clear what we and they hoped would come out of the appointment. I was clear in the fact that I believe him to have high functioning Autism and would like a diagnosis if that were the case; and if not to discover what it was.

Autism Assessment – Pregnancy, Birth and the First 2 years

During the Autism assessment the paediatrician asked a lot of questions about the pregnancy and first two years of his life. It makes me feel pretty bad because it is all a bit of a blur and to be honest he cried a lot, I found it hard to play with him (he still has limited attention span), and can’t really remember much mother-baby communication (apart from a smacking of his lips kind of clucking sound when he wanted feeding).

The paediatrician could not have been lovelier for the duration of the Autism assessment, asking how I’d coped with 4 boys (especially since I had been breastfeeding both of the youngest 2 at the same time). I did remember how empowered I had felt when our little Sensory Seeker was a baby, especially when I did not give up and let people tell me that my breastfeeding was the cause of his weight loss.

She reassured us me that his behaviour was not down to parenting, and nor did she believe that he was suffering from a developmental delay (although I’m sure I would prefer this to be the case so he could catch up I just know it not to be true). That they had enough experience to be unpick the complicated nature of his behaviour and see which boxes he ticks, and categories he falls into. That actually, mainly due to his language developmental delay, he may end up diagnosed as something now, and then a few more years down the line reassessed and re-diagnosed. That the important thing was to establish what help would suit him best right now. The thing is I know this Autism assessment will question his imaginative play and language delay coupled with just how bright he can be – which conflicts an Autism and Aspergers diagnosis. He may still remain undiagnosed.

Autism Assessment – Different view points

There’s always a worry that people do not see what we see – and I am sure I can say we here and it’s not just me. So it was reassuring that at the end she went and spoke to the language therapists, who took part in the Autism assessment, they described him (and the way he plays) exactly as we just had. What that all means I do not know.

I know the paediatrician has arranged a meeting with the school next month – so there will not be any answers until after then. But things are coming along well. His one to one support is looking after him well, and I can see he is popular among some of the children. I saw a couple of boys doing this special ‘tickle’ thing our boy does yesterday to him.

Autism assessment - school help with visual aids regardless of a diagnosis

Every morning we go in and we look at his visual book together. His one to one shows him the picture of what he is going to do and then he finds it in his book and puts it on the next page, then the next picture, then the next – until he can see what he is doing for the whole day. His one to one has copies of the pictures and together they pin them to a wall in the book corner. As the day goes on, and the activities are done, she takes them away. This means he can see what is left to come, and sort of a judge of how much of the day is left. I take the book home and we can then ‘discuss’ what he has done at home. I’m finding he is getting more and more patient with it all, a clear sign his attention span is developing too.

12 thoughts on “Autism Assessment: The Video Appointment

  1. What a relief to have them see your little man the same way you do. I hope this leads to more information for you soon x
    #SSAmazingAchievements

  2. I really hope you get answers soon. It is so tough without them, without the knowing. No matter what those answers are, you then have the ability to start formulating an action plan more clearly. You have the official stamp. I’ve had one of those days today in which I wished I had that.
    It sounds like a very thorough diagnosis process, and it seems that everyone is so helpful and professional. That is great. And it is great that they saw him as you do. It is very rare.
    Good luck! x

  3. I remember feeling like this, worried that they wouldn’t see what we did. That they wouldn’t diagnose him. I really hope you get the results you want.

    It’s great that his visual book is working so well, we find that all things visual work really well. Great news about his attention span.

    Thanks for linking up with Small Steps Amazing Achievements :0)
    x

  4. It sounds like you are making some great progress towards getting a diagnosis. I do hope you get some answers soon.
    We’ve just started using a visual book to set out the day and so far so good, that is until something unexpected crops up! Our proffesionals are back on the fence though at the moment so the diagnosis we were hoping this year for isnt going to come any time soon. Its good to know that someone somewhere is though! #SSAA

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