Tag Archives: diagnosis

Living in Limbo - Life with No Diagnosis

Living in Limbo – Life with No Diagnosis

I really do hate the school run because it means interacting with people. When I come home I am actually drained to the point where I have to sleep. I have even started taking antidepressants and fighting off the need to recuperate until the afternoon. But it is no good I can only reset myself with sleep. Then I have to do the school run again. I was put on these tablets fourteen months previously when I went to ask the doctors about a referral for seeing whether I have Asperger’s Syndrome. He told me it didn’t matter and that I could tell people I have if I liked – and wrote out the prescription. Ever since I have just been taking the tablets and paying for repeats. But still nothing is easier.Living in Limbo - Life with No Diagnosis

This morning on the school run a random man who works for the council called me a bully. I asked him what he meant and he laughed and said I had stolen my son’s scooter. I told him it was mine. My son was on his own scooter and mine (adult size too) has flowers on. I don’t get it – was he trying to tell a joke? People always have to comment on my scooter – there’s always something. But it isn’t just my scooter – it’s my clothes and other things too. I get hot really easily and hate to overheat. I was wearing shorts the other day when the sky was grey but it was still really warm. Again always said in this “jokey” way was whether my weather app was wrong! I am sure it was a joke but I can’t help it I just feel the need to explain that I get hot and can’t cope.

The doctor said that it was unlikely I was on the spectrum because I was aware that people treat me this way. That I want to fit in. He said I just haven’t had the right role models – teaching me how I am meant to behave in certain situations. But I thought that social skills were meant to come naturally? He said I could make a list. But I have no energy all the time. Surely someone should just be able to assess me and see. Why does it always have to be proven? I have begun to accept myself whether I have or haven’t got Asperger’s. Explaining to people that I don’t always say the right thing, or do the wrong thing or even get what is expected of me. It is up to them how they behave back towards me then. I do not know what more I can do.

Is there any point seeking a diagnosis of Asperger's Syndrome as an adult?

Asperger’s Syndrome: Is there any point seeking a diagnosis as an adult?

Is there any point seeking a diagnosis of Asperger’s Syndrome as an adult?

I often wonder whether it is worth being assessed for whether I have Asperger’s Syndrome or not. But as an adult is there any point in seeking a diagnosis even if I did? It has been hard enough fighting for support for my children, never mind myself. Is there even much support out there for adults with Asperger’s Syndrome: For women even? Where would I begin and what would it achieve.

Why I even considered that I may have Asperger’s Syndrome

Is there any point seeking a diagnosis of Asperger's Syndrome as an adult?I first started to consider that I may have Asperger’s Syndrome when a seed was planted in my head when my oldest son was diagnosed. We were asked whether I had any traits as part of his diagnosis. I often have `meltdowns’ but have always just put them down to all the undealt with issues from my childhood. We did mention the fact that I cannot have hangers with nothing on them left in the wardrobe in between clothes. I hate change and really struggle with it. And of course I really struggle with relationships whether people want to admit it or not.  I do not understand really the concept of things not being the way the rules say and just ignoring it. I know people do not like to be corrected and if I think hard about it I can stop myself from acting – but the thoughts are still there. I am sure there a lots more reasons that put me in the three areas of the triad but I try not to think about it too much as I feel like I am trying to make myself fit when I may not.

What would a diagnosis of Asperger’s Syndrome mean for me?

Is there any point seeking a diagnosis of Asperger's Syndrome as an adult?But a diagnosis (if I were) – well that wouldn’t change any of that would it. Possibly if I knew there was a cause would that make me feel any better about myself? And what if it was determined that I wasn’t on the Spectrum – would that make me feel bad that I have these behaviours with no reason – would the Asperger’s give me a reason to feel so different? Am I just hoping that it would give me a sense of belonging? Would there be any help I could access to help me fit in better? I mean I know that I am useless at small talk: I can barely even manage to say hello how are you on social media when I have something I want to discuss. I have made myself aware of this and try to at least apologise and say it afterwards – or is this normal? Am I actually just too self-absorbed?

If you have been diagnosed, or know of anyone who has, as an adult – then how did you know? And what did you do?

You may have found this page and discovered that I do not have Asperger’s Syndrome, or would like to talk to someone who has received a late diagnosis, therefore I can recommend that you visit Jax’s who has.

I would really appreciate any feedback on this topic please. x