Category Archives: Education

The journey through the Education system as a parent with children with Special needs, and what I have learnt along the way.

party sensory processing disorder

The Only Child Not Invited

It is that time of year again – Party Season. I know it is hard when a child is different to others to cope with their additional needs at a party – but honestly The Sensory Seeker is doing so well that I would actually say he isn’t much different to the others. I do understand that not everyone needs to be invited to every party but it is hard (probably more for me than him) when he is that child: You know the only child out of the whole class who hasn’t been invited.party sensory processing disorder

It isn’t even so much about the party it’s about him knowing he’s not fitting in. That it is okay for everyone else to go so why not him as well? The ironic thing today was that he came out with a sheet about worries – the school obviously trying to get disclosures for social services with the use of a Worry Monster. Ironic because they weren’t very sympathetic to listening to these worries; simply saying there’s nothing we can do. I explained that I knew they couldn’t make him be invited to the party (although I am sure his EHC Plan probably does make provision to ensure that he socialises/fits in with his peers) and that I didn’t like how it was so apparent to him that he was the only one not invited (erm like they had all been handed out in front of him). I was reassured that they had only been given out at break time. It is real progress that he is getting so smart. Previously he never noticed this happening but still wanted a party to invite everyone to. A blessing and a curse of his development.

His birthday is coming up and we are taking him out of the country but he wants to have a sleepover a different day this year. He doesn’t really care who it is (well actually his first preference is his 14 year old cousin who doesn’t live near us!) he just wants a friend – someone who wants to spend time with him. But again the school will tell me that he does have friends, that he is a happy and likable member of the class – so how come he doesn’t feel that he is/has because he isn’t invited?alone at playtime

Disclaimer: He is invited to the odd party and I am very thankful to those parents. I just wish this wasn’t even a thing. Why invite all but one?!

Alone at Playtime

Friendships. When it comes to friendships it is the one thing I really struggle with. Whether that is because I am actually Autistic or not makes no odds because either way I don’t seem to be able to keep friends. So when my children come home and tell me that they have no friends I really do not have the right words for them. I want to go and make people be friends with them, or tell my kids – fuck them they don’t deserve your friendship anyway. But it is the most painful thing and I know I long for that bond that others seem to have so easily.

It started when The Sensory Seeker made an imaginary friend – his name is a crossed between Mr Invisible and Mr Invincible (he gets the two mixed up and when I tried to correct him he said, “He’s my friend and so I can call him what I like!” I have never had any imaginary friends in my house before and I am glad that he is able to be creative but I do hope it is not because the school are failing him socially – and I fear that that may be the case.alone at playtime

I would go in and speak to the school about it but I haven’t for two reasons – the first being that when we go into the playground other children call his name in a way that seems to be pleased to see him. Plus he hasn’t been sobbing and breaking his heart, he just tells me that no-one plays with him at break time. Oh and because the school don’t really seem to care. No schools seem to be bothered about the social side of my children’s disabilities in my opinion – but maybe that’s because I am one of “those” parents.

The really heart breaking thing though was, not to hear that no-one wants to play with The Sensory Seeker, but that his confident, well-loved, well-liked older brother confided in my that his close friends no longer want to play with him because of his brother (The Sensory Seeker). Although I would like to hope this is not true since he told me I have actually stopped to notice what happens in the playground in the morning and there is a shift in the dynamics.  I want to be able to tell him how to fix it, how to either get that friendship back on track or deal with it and move on – but I am no good at any of that and really don’t know how. I can’t go and speak to the other children’s parents because it is just one of those things – and you can’t make people be friends.

I hope it isn’t true and my children are just trying to get even more attention from me, and actually they are happy and well-liked at school – but my own fears choke me up – and I am just glad they have each other.

Do you have any experience with this? Any tips or advice for me and/or them?

Please note that the photo was taken in the morning before school and he wasn’t actually alone in the playground at playtime – which is also why he looks so happy.

Changing from a Statement to an EHCP

Changing from a Statement to an EHCP

Experience of EHCP Paperwork

The hardest thing for me during the whole process of switching from a Statement to an EHCP was time – and the fact that I had to think so much about the answers to the questions I had to keep answering what seemed like over and over and over again. I was glad to have a degree when filling in the Family Contribution form and cannot imagine how difficult it must be for some families to do. I opted to type mine on the computer which meant I could just add to it, or draw out relevant bits when asked for the information again by someone new. I completely forgot to ask to be referred back to Occupational Therapy in time and so they have not been part of the process.Changing from a Statement to an EHCP

Experience of The EHCP Meeting

Well I have to say that the meeting itself was not as hard as I thought it would be and I guess it is because no-one mentioned any levels and I already knew that he was behind his peers – so that was not a big shock. I feel that I did not really know or understand what was going on and had to just trust the professionals. In attendance I had the current school SENCo/Head, the new school SENCo, his new TA, The Speech and Language Therapist, The School Advisory Teacher, and the lady from the council.

Changing from a Statement to an EHCPWhen I asked about adding in his Sensory Issues it became a little awkward as here in the UK there isn’t an official diagnosis for Sensory Processing Disorder. I hadn’t included information from the Occupational Therapist or Paediatrician as their reports were longer than the date – but the lady from the council said she would see if she could include them. I do think that the people in the room were a little under-educate in sensory issues and they seemed to think everything could be sorted with some tactile toys (least it is a start I guess). I suppose the problem also lies in the fact that I did not really know what to say as how to include it into the EHCP either.

It was good to hear his progress and that he has a good work ethic. He just wants to be like everyone else and tries so hard to obtain it. Fingers crossed he even may have passed his phonics screening this year! There was a lot of emphasis on making sure his transition to his new school goes well and I met his new TA. His old TA will also be moving schools and working as a classroom assistant. It was hard to hear how much me going away affected him and his behaviour – but was good in a way as it highlighted how he needs extra support to deal with changes. It was good to hear that the schools were liaising on the best ways to help him.

I now have to wait for the draft EHCP and then I have a very short period of time to read through it, making any changes needed and send it back. I am feeling hopeful -fingers crossed now.

Starting School Fears with SEN - The Reality

Starting School Fears with SEN – The Reality

When The Sensory Seeker was offered a place at a Mainstream school I had many worries. I felt that the best place for him was in a special needs school and that he just would not cope. I wrote the post Starting School Fears with SEN – in which I wrote about my worries and how irrational I thought that they really were. Now the end has come of his time at this school and he has to move on to another Mainstream school so I thought I would come back to that post to explain what happened now he is 7 years old.Starting School Fears with SEN - The Reality

Fears when The Sensory Seeker Started School

  1. Will my child eat?
  2. Will my child be able to use the toilet?
  3. Will my child make friends?
  4. Will my child with Sensory Issues keep their clothes on at school?
  5. Will my child struggle getting changed for PE?
  6. Will my child ever hold a pen?
  7. Will the staff in a Mainstream school be supportive of my child’s additional needs

Will my child eat?

Thanks to the introduction of free school meals The Sensory Seeker not only eats at school but he eats better at home too – even trying new foods that he would have never considered before. We can even encourage him to eat foods he would rather not eat (when given an incentive). He has even got much better with his cutlery.Starting School Fears with SEN - The Reality

Will my child be able to use the toilet?

At first The Sensory Seeker did wet himself – but now he is doing fine. Yes he uses the toilet completely independently. I think at school he is probably doing better than some other children – as he doesn’t ALWAYS forget to flush and wash his hands! At home we sometimes have trouble with toilet paper, but on the whole he is doing really well. Yesterday my husband told me that our son was even happy to use the urinals (which was a great time saver too!) We still have the odd toilet accident but they are the rare occasion rather than the norm.

Will my child make friends?

Yes The Sensory Seeker has people he considers are his friends, gets invited to the odd party and has a couple of children coming to our house for his birthday. He also goes to groups outside of school time and he has made friends there too. In fact I am really proud of how he has coped in those groups – another sign of how well he is doing independently.Starting School Fears with SEN - The Reality

Will my child with Sensory Issues keep their clothes on at school? And Will my child struggle getting changed for PE?

With his sensory issues he often takes his jumper off when it is still cold, or ends up walking down the road topless on the way home, but by and large he is okay and not doing daft clothing stripping in school. The Sensory Seeker is fine at dressing and undressing and has just asked for trainers with laces so that he can try to learn how to do knots (obviously I am doing them up for him but helping to encourage him to pull them undone).

Will my child ever hold a pen?

The Sensory Seeker can now not only hold a pen but is trying to create sentences, recall them and write them down (trying to remember them all is the tricky bit for him right now but the Teaching Advisory Service told me to write his sentence down, cut it up and then let him sequence it. It is hard to believe that it was considered whether he was better off just using an iPad rather than writing.writing name

Will the staff in a Mainstream school be supportive of my child’s additional needs?

Will the staff be supportive – well I could not have asked for more! I think the right attitude from the staff can make so much difference and The Sensory Seeker has come on in leaps and bounds. They are always there for me (to listen to worries no matter how small) and have brought him on from P levels to that of a child securely in the year below!

Other Posts of interest:

 

Sensory Processing Disorder and Mainstream School

Sensory Processing Disorder and Mainstream School

Children with Sensory Processing Disorder may end up attending a mainstream school. This could be for many number of reasons including the lack of availability of special schools, not meeting the criteria for special schools or just wanting them to attend a mainstream school. You may want to just send the child who has sensory difficulties to the local mainstream school so that they mix locally with their peers or you may want to consider what they will offer in terms of help and support.

Sensory Processing Disorder and Mainstream School

Sensory Processing Disorder and Mainstream School things to consider:

I was really nervous about The Sensory Seeker starting at a mainstream school but actually I think it was the best thing for him. He is now going into year 2 and doing really well. I believe this is down to the support of the school.

  1. A school that cares..

For me it was very important for me (as well as my child) to know that the school would talk to me before my son attended, to help alleviate any fears. Unfortunately the primary school my other 2 boys were at did not care and said lots of negative things about my child (and my parenting). It was then that I looked for alternatives (for ALL of them).

  1. A school that understands.

The school that my boys moved to had a good understanding of Sensory Processing disorder and offered suggestions on how they could help. I don’t think the school needs to have previous experience (which they did) but they DO need to listen. I think this is especially important as individuals have different Sensory Diets and therefore will be affected differently.

  1. A school that supports.

I feel that we have been really lucky and the Head Teacher/SENCO has been really supportive. She works long & hard, knows her stuff, researches what she does not know, asks for our input, is always approachable – and found the money required for full time support as needed for our Sensory Seeker. She even has helped with suggestions to help support him out of school.

Sensory Processing Disorder and Mainstream School

Each of the Senses and Problems in Mainstream School

Auditory – how are the classrooms laid out? Is their provision if the child needs extra noise stimulation, or somewhere quiet? Will the teachers shout? How to they handle undesirable behaviour? Will the individual be told off, or just praised for desirable behaviour?

Visual Sense – What are the displays like? Is there too much or not enough stimulation around?

Proprioception & Vestibular Sense – Is there playground equipment? Are there rules? Do the school have any gross motor skills programmes? Will they ensure the child is supported during PE lessons? Does the school have stairs? Will there be additional support with toileting and eating (not stuffing too much food into their mouth so that they choke) and/or getting food all over the place. That the right amount of stimulation is provided so that they do not appear too rough on others.

Tactile – that they have enough input through touch and are given clear rules and guidelines about touching others (without feeling that they are being told off). Help with food (again) to take into account any texture problems as they can be very particular about things touching or the sensations from the food. Help dealing with not getting covered in things (food, paint, mud etc) if a tactile sensory seeker. Also helping to develop peer relationships and explaining why the individual is standing too close/trying to touch/covering themselves in food. Will the school allow the child to bring in sensory aids such as a weighted blanket and/or chewy toy?

Olfactory – Is food cooked on the premises? Are there any other obvious smells? Can the child bring in a hankie or something else with fragrance?

Other Posts you may find of interest:

Obviously I have written this post with my very limited experience of our own Sensory Seeker who seems to be quite mild and coping really well. I would love to hear feedback and suggestions for other parents of children with Sensory Processing Disorder in the comments below. Thank you.

Logan Osborne: Man with Autism Graduates with Masters Degree

Logan Osborne: Man with Autism Graduates with Masters Degree

It shouldn’t be a big deal that a man has graduated with a Masters degree but I am sure that anyone touched by autism will know how much of a battle it can be. Their little habits, rituals, anxieties and lack of health care and social skills make it all the more difficult for them.  Any parents would be proud that their child has a first degree, so to go on to gain a Masters is even more impressive. I have written previously about my oldest son who has Asperger’s Syndrome going to University and so it is really reassuring to hear of the success of Logan Osborne.

Logan Osborne Autistic Msc StudentLogan Osborne first gained a BSc(Hons) Geography at University of Brighton in 2013. Now he has an MSc in Geographical Information Systems and Environmental Management and is looking for a job in geographical information systems.

Logan’s parents want to give some comfort to others that with the right support anything can be achieved. They say that the University of Brighton’s Disability and Dyslexia team gave Logan excellent support. Logan said that he felt that he could always talk things over with them, including checking his work, if he needed help.

If you or your child is thinking of going to University and have a disability then it should be declared in order to obtain the right support.

The Disability and Dyslexia team at the University of Brighton provides one-to-one mentoring and specialist study support, advice and help with applying for funding. Contact: disability@brighton.ac.uk 01273 643799, and for more information go to: www.brighton.ac.uk/current-students/my-studies/declaring-a-disability-or-learning-difficulty

 

real life measuring

Real Life Measuring

One of the ways of helping bring Maths to life is by making your very own Skeleton. This exercise was beneficial to The Sensory Seeker because it was a very concrete activity. By that I mean he had a visual way of processing the information – as opposed to an abstract idea in his  head.

Real Life Measuring

real life measuringFirst we measured different things – our hands, a chair, the table. We measured them using our hands. We compared how different sized hands (mine Vs the children’s) needed a different number of them for the measurement of the different objects. We then moved onto tape measures (soft and hard), rulers etc and talked about cms and inches.

This was a fun way to introduce measuring and was much better at holding The Sensory Seeker’s Interest.

 

 

Measuring Yourself to Make a Life-Sized Skeleton

real life measuringreal life measuringThe following week we made a life sized skeleton. We did this by taking different measurements on the body and then drew the same size for each part on a piece of paper. We then cut it out and attached it together. It was good to demonstrate how something the size of The Sensory Seeker could be put together from the smaller parts. It also gave him a better understanding of his bone structure – as well as things like fine motor practice (drawing and cutting), number sequencing, attention, instructions etc. We used blue tac and a biro to make holes for the split pins.

I think it was also good for self-esteem as now we have a bony version of The Sensory Seeker proudly hanging on the back of our kitchen door. It also fits in very nicely with our Pirate theme – which really began when we spent the night in a Pirate room at Legoland Windsor.

Shapes and Numbers Maths Monsters

Shapes More Maths Learning

Shapes and Numbers Maths MonstersThis week we learnt about Shapes as part of our Maths family lesson. But it was also combined with numbers. We were explained what the different things that each year group were expected to know and I have to say there’s a massive jump between Reception and Year 1. Again the activity was able to be adapted to suit different ability levels.

Shapes Maths Monsters or Number Worms

Shapes and Numbers Maths MonstersThis week we made a Maths Monster. Well that’s what I called it anyway (I am sure it wasn’t quite as fierce when the tutor said it – maybe a number worm or something). The children had a number of shapes to pick from. At this point you could make sure they know the names of the different shapes, or talk about the different properties – how many sides, angles, and even go as far as talking about perimeters and circumferences (but not with children as young as primary I expect).

Shapes and Numbers Maths MonstersNext the children were given lots of coloured paper from them to chose from and draw around their shape. Great for pencil control, hand-eye co-ordination. I like how they have so much choice (shape and colour) as this is good for independence and self-esteem. Next some fine-motor development as they cut and stick their shapes. This could either be to each other or on another piece of paper. Arranging the shapes into a monster or worm. Again this is great for placement, creativity etc.

Shapes and Numbers adapting for The Sensory Seeker and his Older Brother

Shapes and Numbers Maths MonstersThe Sensory Seeker needed help with drawing around the shapes more than his older brother. The older brother needed just reminding to hold the shape still with one hand. The Sensory Seeker is crossing his arms across and not quite figured how to just go all the way around.

Shapes and Numbers Maths Monsters

Each of the shapes then had a number written on in a set pattern. Starting at the simple end of children writing numbers up from 1 (in ones) to making it more complex such as writing numbers in multiples (say the 3 times table). For The Sensory Seeker it was about writing the numbers the right way around (and he did do 3 backwards). I am pleased to see his progress that if I say the number he has a good idea of what it looks like. I am pretty sure that he does know the order to 10 too.

maths skills

Maths Skills Snakes and Ladders

Maths Skills Learning Through Play

maths skillsThis week I started a Maths course with my youngest 2 boys. Every Monday afternoon for 5 weeks I go to their school for a couple of hours. The first hour the tutor talks to the adults and the second hour the children come in. This first week was a lot of form filling, rules and red tape as well as explaining a bit about the course and Maths in schools. The reason I wanted to do this with both my children is that there may only be one school year between them but there’s a massive academic gap due to The Sensory Seeker’s Global Developmental Delay and the older of the two being exceptionally bright. This often means that it is The Sensory Seeker that has the attention and the older one is left to get on with things. I suggested that we all go so that the older one could help his younger brother. I thought this family time together would be beneficial to us all. This first week what I learnt that the best way to bridge this gap is by learning through play.

Maths Skills A Home Made Snakes and Ladders Game

maths skillsThis week’s Maths Skills activity was to make a Snakes and Ladders game. The boys were given a net of a dice which they had to cut out and fold together, a sheet with numbers on, a sheet with snakes & another with ladders – to cut out and glue on in the required places. The Sensory Seeker had the ladders and the older of the two boys had the snakes. I was actually really impressed with how The Sensory Seeker coped with the task and just got on with it. It was actually the older one who wanted the help with his snakes.

maths skillsThis was good for Maths Skills; fine motor skills, number, the concept of addition and subtraction (up the ladders and down the snakes), and they made a dice (learning that the 2 sides add up to 7). My older of the two boys did ask what it had to do with Maths and it was nice to see that by playing together they could both enjoy the subject. Of course playing games then has many skills such as counting, turn-taking, etc.

 

Is the Pen Mightier than the iPad?

Is the Pen Mightier than the iPad?

Is the Pen Mightier than the iPad?There is no denying that times are changing as we move through the Technology age.  More and more is technology based these days, gone are the days of record players, cassette tapes, video recorders (being replaced with downloadable content), and even cheque books are being phased out (not really needed as much with online banking and ParentPay). I am sure you can think of lots more examples too. But how about the Pen? Can you see it being replaced? Will in the future we only make marks on computers, iPads, and smart phones? Will the pen go into extinction?

The reason I am considering whether the pen is mightier than the iPad is because one of the reasons that it was picked up that our son has Sensory Processing Disorder was the fact that he was falling further and further behind his peers. Last year it was even discussed whether to hold him back a year at school. So far this term he has been doing really well, and even holding his own in some of the groups that he is in with his peers. But now the question falls as to whether his inability to hold a pencil and write properly is further hindering his development – and if, indeed, using an iPad would help him to progress more.

The Pros

For our Sensory Seeker the obvious answer would be yes to him using iPads if writing is going to become a skill of the past. If the need to write things down by anyone wouldn’t matter. Other ways of developing fine motor skills needed for other things could be developed. Obviously it would give him more of a chance to work through his learning without the added pressure of being able to write. If pens were to become obsolete that would save a lot of trees and a lot less landfill waste from pens that have run out.  Our 11 year old already has a laptop for school and most of the work is done on that, as opposed to pen and paper. It means that he is always ready and never runs out of paper or ink. It also allows teachers to send information and interact with the children easier.

The Cons

I do not know, I like writing. The actual act. Surely there is more to making marks on the page than the end result. I would love to hear what the many stationery lovers out there have to say on the matter. Do we think it could ever become a possibility? As writing is not about to become defunct any time it still leaves the question as to whether our Sensory Seeker should be using the pen or the iPad. If he is not practising his fine motor skills will this not make them weaker? Making it less likely that he will be able to write in the future? Will this make him lazy? Different? And more addicted to technology? The idea is that they will try this out in groups (at least at first) so he would not be on his own. But then the school are wondering whether he should then utilise it at other times too. I guess it is a tricky one, like all things that need to be considered.

What do you think, are we likely to get rid of pens/pencils any time soon?

And I would love to hear from anybody that has any experience with Special needs children and using iPads at school – has it helped them?  Or even anyone’s thoughts on the matter. Our Sensory Seeker  is equally behind in all areas (apart from technology) so it is not to say that he will not progress with his writing at the same rate, and just be behind his peers.